Long time no Post! Sorry. I was so inspired by a friends blog to do my own, and I think that I am failing in comparison. However, I am glad to be able to share with you more news on little Natalie.
She is AWESOME… She is a new kid since we were in Boston. Brad and I joke about the miracle 3 month mark, but we both believe that her procedure in Boston relieved some pressure and created a much happier baby. Since her surgery, she has been a different kiddo. She is so happier and loves to kick and play and still loves to be outside. She no longer cries when she gets her diaper changed, instead I struggle to get her to keep her legs from kicking so I can get a new diaper on. She is so strong, active and noisy:) And she loves to eat her fingers. Sometimes she goes for the whole fist and we just laugh at her. Just in the last week she has discovered that she can grab her toys and put them in her mouth. Everything goes to the mouth including daddy’s fingers. She gets a little upset when she can’t get her toys in her mouth.
Natalie’s follow up visits have gone very well. She just lays there and looks at the monitor like she knows what they are looking at. She was awake, no tears or wiggles and not nursing to get through the echo. Good Job Natalie! Our visit on Tuesday left us very optimistic. Our echo tech said that he thought he saw growth in the left ventricle. I think my heart dropped to my toes and I couldn’t stop smiling. Then when we went to see Dr. Fernandez he entered the room with a big smile. His words, ” Unless I am hallucinating, that left ventricle looks bigger to me.” Amen. He said that her pressures in her heart are dropping and the flow in her new stent is more left to right which are both signs of growth in the left ventricle. Amazing what God can do. He was very happy with her progress and how strong she is and how healthy she looks. She now weighs 12 lbs. 1 oz. What a little chubber. I love it. She is doing so well and we are so happy to hear that her heart is doing well.
So what next??? About 3 weeks ago week talked to the doctors in Boston and they anticipated that we would have to come back to Boston in the beginning of November for Natalie to have open heart surgery again. We were told to plan to be there for up to 3 weeks depending on the procedure they decide to do. So we waited to hear from the scheduling folks to decide on a date. The phone didn’t ring and didn’t ring, So the patient person that I am, I called Boston. Good News! The doctors in Boston have been reviewing her follow up and have planned another visit, but not open heart. They feel at this time they will be able to just have another heart cath and not the open heart. Not sure of what to think I asked the Dr. “Is that a gooood thing????” She enthusiastically said, “YES! That is a good thing!” Dr. del Nido feels like the cath will be able to do what is needed and we would be able to hold off on the next open heart until next year when she is bigger and stronger. Through this all we have learned that nothing is set in stone and changes happen based on how Natalie does each day and each visit the changes that they see. However, Brad and I were both relived to hear that this next trip will not be open heart. We are so happy for Natalie that she is doing well. They anticipate that we will be in Boston in early December, but we do not have a date yet. We also are not sure what procedure they will do during the cath. Our stay should be about a week unless things don’t go as planned. So once we know more, we will share.
The first trip to Boston was great for many reasons. Natalie did great and is feeling better, Brad accepted an new job at MDU and will start October 1st and we got to visit and laugh with friends we had not seen in a long time and Natalie and dad bonded over many walks in the babybjorn. We hope that our next visit will be just as great as the first one.
Now we just continue to focus on Natalie getting stronger and try to relax and feel some sense of normalcy. Brad has been working hard to tile the bathroom floor and I have gone back to work. Oh, and the the Vikings are 2-1. Who would have thought:) Pharaoh and Ranger sleep as much as ever and are adjusting to life with Natalie. Pharaoh has pulled a few pranks, but is still a sweet puppy and Ranger lost ten pounds when we shaved him this summer. Life is good in the Henke home and I am so proud of my husband for reaching his goals and still having so much time to devote to Natalie and me. Thank you Brad!
Praise God for all the good things he has given us!
Please continue to pray for growth in the left ventricle and for chubby to get chubbier!!!