Natalie went to be with God today. She went peacefully and without pain, surrounded by love in our arms. We are thankful for the past two days as we’ve been able to hold her close and have some last moments together with lots of hugs and kisses. She gave us two very special days. She even had a talk with the new baby. We have a huge empty spot in our lives and in our hearts. It is made tolerable only because we know where she now is, and it is a better place than any of us can imagine. We pray that God will continue to fill us up with his grace and the memories of Natalie’s love.
She now has a perfect body, and is with her Creator in heaven. No more pain, no more discomfort, no more IV’s, and no more surgeries. She can drink all the water she wants, and can run and play like she was never able to do on earth.
Natalie touched everyone she came into contact with. She exemplified God’s love as she was here on earth, and we know that she will be remembered by so many. It was amazing that the hospital staff who see thousands of kids a year all remember Natalie. They all seemed to have a special place in their hearts for our little girl. We thank God that He gave Natalie to us to care for. We wish we could have kept her longer, but we will always cherish the past 28 months for as long as we live. Our memories of her are happy, and they will not diminish for as long as we live.
Thank you all for your prayers, and for the prayers we know will continue. We have been blessed beyond belief by the people that God has put in our lives. We will update again with information about the service and other things that we will be putting together to remember this precious gift from God.
God promises blessings in our lifetime. We just never know how long they will stay with us. We love you Natalie Jean. Our joy lies in knowing that we will see you again someday soon!
When she was 3 months old, cheered on dad
The dog really loved her, too
Beautiful smile again. She wore it a lot, even though her body was always hurting a little.
She loved her iPad
Yesterday, we got news that we’d known was possible all along, but were hoping would never come. We met with the entire team, and they are at a point where there is nothing else they can do for Natalie. Her kidneys and lungs are not going to recover to a point where they can support her body.
From the time all of this started, every decision we’ve made has been with Natalie’s best interest at the forefront. We would both do or give anything in order to give her the best chance at a full life. Now, we have to make decisions that will help her live out her remaining days in the most peace and comfort that is possible. Please pray for comfort for Natalie, we want this more than anything.
We draw comfort knowing that she will be in the arms of her Creator in heaven. She will finally know what it feels like to be comfortable and have a healthy, heavenly, body. She can walk, run, and play and do whatever she wants to do, without the limits she had on earth. I pray they have an endless supply of water for her to drink, and someone to pull her in her wagon.
She brought joy to our lives that we could have never imagined, and to the lives of everyone she came in contact with. It seems that everyone remembers her, even though some of the hospital staff see thousands of children. They remember her piggy tales and her constant need to be on the go. She traveled miles in these hospital hall ways and every one would want to stop and talk to Natalie. She is so loved., and she loved so much!
We are spending time snuggling her and loving her. Singing Itsy Bitsy Spider and If You’re Happy and You Know It. She loves those songs.
We will try to update again, right now we’re pretty emotionally drained.
Thank you all for your prayers throughout these past couple years. Thank you also to those who have helped. Friends and family for being here with us, and for watching our dog and our house for us when we’re gone. Everyone who has prayed, called, and texted; these words of encouragement help more than you can imagine. I would name everyone, but it would take a long time, and I’m afraid I’d forget someone. So, we’ll just say thank you everyone for now.