What a little bug. Natalie wanted me to update you on her day today.
Today was good. I ate well, I giggled and I saw a puppy. I really like mashed potatoes and anything out of a cup or straw. Cheerios are yummy. I like going for walks and I keep asking those doctors to let me go home. I miss my puppy and kitty. I got my second tooth today, so I showed mommy how hard I can bite now. She was impressed and said OUCH! I didn’t cry at all when they took my blood pressure or my temperature tonight. Daddy, you would be so proud of me. Mommy and me miss you so much and can’t wait to see you. Don’t worry, I am taking good care of mommy. I give her lots of hugs and I kiss the phone each time I get to talk to you. Hurry Back Daddy. We have to play catch again when you get here. I am practicing. I reached my goals for milk today, ahead of schedule, just like you:) I am pretty sleepy so I will let mommy finish. I love you Daddy! See you soon! Nite, Nite!
Well, I don’t have my proof reader ot my blogger here tonight, so I will try to keep things short and sweet…
Today was a good day for Natalie. Every day off of Bumex has made her more comfortable and much happier. That is always good for my heart. We giggled and played and had a pretty quiet day. Today I spoke with Dr. K and he told us that we need to get back to Boston soon. I think those words were just too much today with Brad being gone and no one to hug me after that news. We will return to Boston in early April for another heart cath where they will dilate her septum just a tiny bit. Enough to let some blood flow through and reduce her pressures, but not to much to drop her profusion to her lower extremities. They will also look to see if there is any more fibrous tissue that they can remove to help her gain some more elasticity in her ventricle. They say it should be a short stay, but that is what they told us in December too and we all know how that went.
For now we will continue to focus on her intake of milk and other fluids to keep her hydrated. We have an MRI scheduled for Thursday morning and will still go ahead with her feed tube on Thursday as well. The feeding tube will help us get her fattened up so that she can grow and get stronger for the future. We also can give her meds that way and not have to make her so miserable every day and night. She is really doing well and surprises the doctors. Every day the doctor says how amazed they are at how good she looks with her pressures being so high. She really has been more comfortable that last 2 days and we actually have heard her laugh and jabber again. Praise God….
I must thank you all for your continued pray for Natalie and our family. I am only human to ask God why this is happening to her, but am reassured and trust in his plan for Natalie and for us too! It gets hard at times, so I try not to understand it, but rather try to focus on enjoying the precious gift he gave us. What joy she brings to our lives.
We will talk to you tomorrow. This Mommy is tired!
Good night all!