Well after a long day, Natalie is out like a light. She did so well today. We started early this morning with EKG, blood draw and X-ray. You would think after looking at that list the tough part was over. Well truth is that was the easy part. Tough for Natalie because of the pokes and being held down, but she did so great. She smiled at everyone and made people smile all day long. She must have found her voice, because she was squawking and talking all day.
As I said that was the easy part. As we finally approached our time to meet with the doctors, all our lead up conversations kept throwing up this red flag that Brad and I tried to avoid hearing: SURGERY. We knew we would be here for the cath and after several conversations with the nurse practitioner over the past few weeks, we let ourselves believe that we would be home in time to watch the Vikings win on Sunday. After a conversation with the NP this morning, she said talks with the surgeon last evening led her to believe that we would most likely be admitting Natalie on Monday with her open heart surgery scheduled for Tuesday. Brad and I both just sat there with blank looks on our faces and in shock. What we had tried to avoid believing was real. Natalie will most likely spend her first Christmas on the 8th floor of Boston Children’s Hospital in recovery.
Tomorrow we are lined up for another long day starting at 7 am sharp. We will admit Natalie for MRI, sedated echo and heart catheterization. During these test the doctors will be looking at the heart and testing sizes, pressures and functions of the heart in preparation for Tuesdays Surgery. We don’t know exactly what they will do on Tuesday until we meet with the doc’s tomorrow evening and even then, we won’t know what the surgeon decides to do until he is in the heart and performing the actual surgery. The one thing that we all know is that the goal is for Natalie to end up with a two ventricle heart when this is all done. We know that they will do what is best for Natalie.
The science behind all this is so amazing and God has given these doctors amazing talent and knowledge to be used on his tiniest little sheep. I just wish our little sheep didn’t have to go through this. She is not alone. We are all praying for her and she is very strong and healthy. We thank you all for your prayers and support.
We better get to bed now as morning comes quickly. Natalie is snoozing and Brad and I are cuddled up in the single bed preparing for a long day tomorrow. Natalie and I are sharing the “big” bed. It’s a double…. Brad gets the single bed all to himself. Lucky Man.
We will keep you all posted tomorrow night after we learn more of the exact plan. Good night!
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