Hi,
Sorry we haven’t posted in a while. We just haven’t had a lot of new information, we’ve been in kind of a holding pattern. Natalie is doing okay right now, the fluid in her body has gone down and she’s looking and feeling better. Her left ventricle couldn’t quite keep up, so they have her back on meds to keep her right side doing most of the work. They are tentatively scheduling her for surgery on Thursday morning, but that could change.
She is quite unique in that her heart is almost completely normal other than her small left ventricle. Most patients like her have small aortas and other parts, but hers are all normal. So, they really would like to find a way to perform a surgery that will allow her to still use both ventricles rather than bypassing the left altogether. The doctors keep telling us that she is really making them think.The surgeon has sent all of her files over to the University of Boston to get an opinion from them as well since they deal with a higher volume of patients of this type.
So, the plan is to do a cardiac MRI tomorrow. After they analyze the results from that, then they will sit down with us and decide which route to take. We’re praying for a surgery which will allow Natalie to use both ventricles, as this is more ideal for her in the long term. However, if they don’t feel that will be successful, then they will proceed with the surgery that they had been planning initially. Then they’ll do the first phase on Thursday, the second phase toward the end of this year, and the third phase in 1-2 years.
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